Links & Resources
National Institute of Mental Health (NIMH)
Science Writing, Press, and Dissemination Branch
6001 Executive Boulevard
Room 6200, MSC 9663
Bethesda, MD 20892-9663
Phone: (301)-443-4513 (local)
Toll Free: 1-(866)-615-6464
TTY toll free: 1-(866)-415-8051
Information about how to get to NIH is located at http://www.nih.gov/about/visitor/index.htm.
Description: The mission of NIMH is to transform the understanding and treatment of mental illnesses through basic and clinical research, paving the way for prevention, recovery, and cure.
National Institute of Neurological Disorders and Stroke
NIH Neurological Institute
P.O. Box 5801
Bethesda, MD 20824
Voice: (800) 352-9424 or (301) 496-5751
TTY (for people using adaptive equipment): (301) 468-5981
Description: The National Institute of Neurological Disorders and Stroke (NINDS) conducts and supports research on brain and nervous system disorders. Created by the U.S. Congress in 1950, NINDS is one of the more than two dozen research institutes and centers that comprise the National Institutes of Health (NIH). The NIH, located in Bethesda, Maryland, is an agency of the Public Health Service within the U.S. Department of Health and Human Services. NINDS has occupied a central position in the world of neuroscience for 50 years.
National Institute of Child Health and Human Development
31 Center Drive
Building 31, Room 2A32
Bethesda, Maryland 20892-2425
TTD/TTY toll free: (800) 320-6942
Description: The NICHD was established in 1962 to study the “complex process of human development from conception to old age.” In pursuit of its broad mission, the NICHD conduct and supports laboratory research, clinical trials, and epidemiological studies that explore health processes; examines the impact of disabilities, diseases and variations on the lives of individuals; and sponsors training programs for scientists, health care providers, and researchers to ensure that NICHD research can continue.
National Institutes of Health (NIH) Genotype-Tissue Expression (GTEx)
1 Center Drive
Bethesda, Maryland 20892
TTD/TTY toll free: (800)-241-1055
Toll-free Health Info lines may be found at http://www.nih.gov/health/infoline.htm
Information about how to get to NIH is located at http://www.nih.gov/about/visitor/index.htm
Description: Correlations between genotype and tissue-specific gene expression levels will help identify regions of the genome that influence whether and how much a gene is expressed. GTEx will help researchers to understand inherited susceptibility to disease and will be a resource database and tissue bank for many studies in the future.
Description: PatientsLikeMe is a free, online patient network where people can connect with others who have the same condition, and track and share their own experiences. When members share information on PatientsLikeMe, they generate data about the real-world nature of disease that helps industry partners develop more effective products, services and care.
LifeLegacy Foundation, Inc.
Description: LifeLegacy Foundation is a national, 501©(3) non-profit whole body donation program, accredited by the American Association of Tissue Banks for the purpose of education, research and advancement of medical and dental science. Whole body donation improves lives by providing medical researchers and educators the opportunity to investigate, explore, teach, practice and learn about the diseases and conditions that adversely affect people. Our commitment to the highest levels of ethical and quality standards affirms our integrity and commitment to do what is best for our donors, donor families, our clients and the community.
At Science Care, we strive every day to honor our donors by insisting upon the highest standards of excellence in our work. Founded in 2000, we are the first whole body donation program in the country to earn accreditation by the American Association of Tissue Banks, a benchmark of excellence. Science Care’s whole body donation program links donors with those in the medical community who devote their time to developing new, innovative techniques, devices and treatments to advance and improve the quality of healthcare.
ALS Research Collaboration at the University of Miami
Led by Dr. Michael Benatar and Joanne Wuu, the ALS Research Collaboration (ARC) at the University of Miami represents a coordinated effort to understand the reasons why we lack effective therapies for patients with ALS, and to advance scientific progress towards a meaningful treatment for this devastating disorder. It is our mission to overcome these challenges and to help fill gaps in our knowledge by studying genetic and environmental risk factors for disease, illuminating the natural history of disease specifically as it pertains to different genetic causes of disease, probing the relationship between genotype and phenotype, aiding in the development of potential biomarkers and utilizing these to study pre-symptomatic disease, and evaluating new therapies through clinical trials.
Spastic Paraplegia Foundation
1605 Goularte Place
Fremont, CA 94539
The Spastic Paraplegia Foundation, Inc. (SPF) is the only organization in the Americas dedicated to finding a cure fore Hereditary Spastic Paraplegia (HSP) and Primary Lateral Sclerosis (PLS). The SPF is a not-for-profit organization.
American Foundation for Suicide Prevention
120 Wall Street
New York, NY 10005
Toll-Free: 1-888-333-AFSP (2377)
The American Foundation for Suicide Prevention is the leader in the fight against suicide. We fund research, offer educational programs, advocate for public policy, and support those affected by suicide.